Eos Connection 2008:The Sixth Annual Patient Education Conference
Hosted by
American Partnership For Eosinophilic Disorders
In conjunction with
Children’s Hospital, San Diego
July 11-13, 2008
The Marriott Mission Valley
8757 Rio San Diego Drive
San Diego, California 92108
The American Partnership For Eosinophilic Disorders (APFED) is a 501(c)3 nonprofit organization dedicated to patients and their families coping with eosinophilic disorders. Our 6th APFED Patient education conference is to be held in conjunction with a CME program for physician at Children’s Hospital San Diego. Please note the following is a preliminary program. Speakers, topics, and times are subject to change.
On-line Eos Connection Registration
Eos Connection Brochure (pdf)
Goals:
1. Provide an opportunity for patients and families affected by eosinophil-related disorders to learn from international experts and from one another.
2. Raise awareness among healthcare providers, industry and the public of current issues from a patient/family perspective
3. Stimulate ideas to improve the quality of life for those living with these diseases
Conference Registration:
Before June 1st:
Members: $60 per person, $75 per couple (early) for members, $85 per family (includes 2 adults and up to 3 children 13-19 years old)
Non-members: $100 per person, $145 per couple for non-members, $175 per family
After June 1st
Late/On site: $150 per person, $35 for each additional family member
Registration includes a light breakfast July 12th and 13th and beverages during breaks. Children 11 years old and up may attend the sessions, but must be registered.
We are unable to accommodate children under 11 in the sessions.
We encourage the entire family to attend the Friday sessions.
Lodging
The Marriott Mission Valley
8757 Rio San Diego Drive
San Diego, California 92108 USA
Phone: 1-619-692-3800
Fax: 1-619-692-0769
Toll-free: 1-800-842-5329
On-line Lodging Reservations
Airport Transportation: TBA
Childcare: We are unable to accommodate children under 11 in the sessions on Saturday and Sunday. No childcare services will be provided by APFED. Please make appropriate arrangements for your children.
Pre-conference Events
Pre-conference events will be offered by Camp Eos for an additional charge on Thursday evening and Friday morning. Details will be mailed to registrants.
Fun Day:
Thursday July 10th
Location TBA
Private Babysitting
APFED will not offer childcare services. Please make appropriate arrangement for younger children.
Marion's Childcare
1-800-891-5029
www.hotelchildcare.com
Playtime Pro's 619-303-4379
Speakers
As in past years, we will have an impressive faculty speaking at our conference.
Preliminary Speakers Include:
Seema Aceves, MD, PhD
Division of Allergy, Immunology
Rady Children's Hospital, San Diego
Assistant Adjunct Professor, Pediatrics
University of California, San Diego
John Bastian, M.D.
Chief, Division of Allergy, Immunology
Rady Children's Hospital, San Diego
Clinical Professor, Pediatrics
University of California, San Diego
Ranjan Dohil, M.D.
Associate Professor, Pediatrics
Division of Pediatric Gastroenterology
University of California, San Diego
Rady Children's Hospital, San Diego
Elizabeth English R.D.
Rady Children's Hospital
University of California, San Diego
Glenn T. Furuta, M.D.
Pediatric gastroenterology
Associate Professor of Pediatrics
University of Colorado Denver Health Science Center
The Children’ Hospital
Denver, CO
Nirmala Gonsalves, MD
Department of Gastroenterology
Northwestern University - Feinberg School of Medicine
Jamie Lee PhD
Division of Biochemistry, Molecular Biology
Mayo Clinic Scottsdale
Rob Newbury MD
Department of Pathology
University of California, San Diego
Rady Children's Hospital, San Diego
Philip E. Putnam, MD
Associate Professor of Clinical Pediatrics
Director of Endoscopy Services
Cincinnati Children's Hospital
University of Cincinnati
Jonathan M. Spergel, MD, PhD
Assistant Professor
Division of Allergy and Immunology
Children's Hospital of Philadelphia
University of Pennsylvania School of Medicine
***Preliminary Program – Times subject to change***
Registration
Friday, July 11th: 8am-9am
Friday, July 11th: 1:30pm-2:30pm
Saturday, July 12th: 7:45am-8:30am
EOS Connection 2008 Conference Program
Thursday July 10th
Camp Eos Family Fun Day Location TBA
Friday, July 11th
1:00pm - 2:00pm Registration
2:00-3:45pm Discussion Group Session I
3:45-4:15pm Break
4:15- 6:00pm Discussion Group II
Evening Dinner on your own
Friday July 11th
Choose ONE discussion group for EACH time slot (total of 2 groups)
Discussion Group Times:
2:00-3:45pm Discussion Session 1
Group A Eos kids (1 parent must attend) Melissa Tierce
Group B Siblings (1 parent must accompany children under age 8)
Group C Family team building (Dave Brunet)
Group D Parents (TBA)
Group E Teen discussion group (TBA)
3:45 – 4:15 – break
4:15 – 6:00pm Discussion Session II
Group A Eos kids (1 parent must attend) Melissa Tierce
Group B Siblings (1 parent must accompany children under age 8)
Group C Family team building (Dave Brunet)
Group D Parents TBA
Group E Teen discussion group TBA
Friday Evening Dinner on your own
Saturday, July 12th
7:15-8am Breakfast/Registration/Exhibits
8:10am Sessions III :Eosinophils in Immunology
10-10:30am Break
10:30-12:30am Session IV: Diagnosis and Treatment of EGID
12:30pm- 2pm Lunch on your own
2pm – 5:30ppm Session V
5:00pm - 6:30pm Dinner on your own
6:30pm - 8:00pm Fundraising Hike
This year’s fundraising walk will support the San Diego Children’s EE Research and the Apfed HOPE Junior Faculty Research Grants
Hike pledge form (pdf)
Walk sponsor form (pdf)
Preliminary Agenda
7:45am Registration/Sponsor Exhibits
7:15-8:00am Breakfast/Registration/Exhibits
8:00-10:00am Session III: Eosinophils in Immunology
Moderator: Seema Aceves MD, PhD
8:00-8:15am Opening Remarks and Overview of APFED Beth Mays, president
8:15-8:20am History of the Eosinophil James J. Lee PhD
8:20-8:50am Immunology Basics: The Eosinophil James J. Lee PhD
8:50-9:10am Special lecture: HOPE Research Grant HOPE Grant Recipient (SA)
9:10-9:30am Genetics and Eosinophilic Diseases Jonathan Spergel MD, PhD
9:30-10:00am Discussion/ Questions Panel
10:00-10:30pm Break
10:30am-12:30pm Session IV: Diagnosis and Treatment of EGID
Moderator:
10:30-10:50pm Clinical Features of the EGIDs Ranjan Dohil MD
10:50-11:10pm Diagnosis & Prognosis of EGIDs Glenn Furuta MD
11:10:11:40am What’s under the Microscope? Rod Newbury MD
11:40-12:00pm Treatment of the EGID’s Phillip Putnam MD
Dietary Therapy
Medical Therapy
New treatments for EGIDs
12:00-12:30pm Questions and Answers
12:30pm- 2pm Lunch on your own
Saturday July 12th Agenda Afternoon Sessions
2:00-2:20pm Environmental Allergens and EE Seema Aceves MD
2:20-2:40pm Foods and EE Jonathan Spergel MD, PhD
2:40-3:10pm EE in Adults: Just Grown-up EE? Nirmala Gonsalves MD
3:10-3:30pm Questions/ Discussions
3:30- 4pm Break
4:00-5:30pm Session V: Discussion Groups: Living with an EGID
Choose ONE session to attend
Session A School Issues: 504plans, IEP, IHP alternatives to food in the classroom
Moderator TBA
Session B: Coping as a family: Caring for the “well” sibling, finding a therapist, help your child cope, ways to give your sick child control
Moderator: TBA
Session C: Food: Recipe exchange (bring your favorites!), how to read labels, cross contamination, shopping, eating out, safe snacks, how do I know what is safe?
Moderator Linda Roth
Session D: Formula: Tips to get your child to drink, Insurance, DME, demystify the tube, gadgets to help simplify life with a tube, sports Moderator: Cindi Sutter
Session E: Teens and Adults living with EGID: School, college, Work, insurance, travel, dating, family
Moderator: TBA
5:30-6:30pm Dinner on your own
Discussion groups may continue through dinner!
5:45pm-6:30pm Hike Volunteer Meeting and Hike Set-up
6:30pm-8pm Fundraising Hike
6:30pm Hike Registration
7:00pm Hike
This year’s fundraising walk will support the HOPE on the Horizon Research Fund and San Diego Children’s Research Projects
Hike pledge form (pdf)
Walk sponsor form (pdf)
SUNDAY, July 13th
7:45-8:30am Exhibits/Registration/Breakfast
8:30am - 12:30am Session VI
1pm – 3:30pm Lunch and Meetings
8:30-12:30 Session VI- Parenting the Chronically Ill Child Parent and Child panels
Moderators:
8:30-9:00am Elimination Diets 01 Elizabeth English R.D.
9:00-9:30am Handling the child who “cheats” TBA
9:30- 9:50am Questions/ Discussion
9:50-11:15am Parent-Child Panels - Helping our kids learn to cope
Patient and Parent Perspective- Toddlers and School Age Years
Patient perspective: Living with EE - The teen and adult years
11:15-11:30pm Questions/Discussion
11:30am-11:45pm Meeting Summary and Future Direction
11:45-12:00pm Closing Remarks and Presentation of Research Grant12:00pm Adjourn
2pm – 3:30pm Committee Meetings
Political Action
Local Support Groups Fundraising
APFED Volunteer Meeting
APFED's 2008 National Patient Education Conference will be a three-day comprehensive conference on all matters related to EGIDs. Families are encouraged to come together for support and shared knowledge. This is APFED's 6th national event and each one builds upon the previous to ensure the presentations are the absolute cutting edge of eosinophilic knowledge delivered by the foremost experts in the field.
On-line Eos Connection Registration
Eos Connection Brochure (pdf)
Hike pledge form (pdf)
Walk sponsor form (pdf)
