• Support Groups
• Travel Assistance for Medical Care and Flight Sources
• Air Travel
• Car Rental
• Accommodations/Lodging
• Formula Coverage Assistance
• Medication Assistance
• Grants for Medical Services
• Related Organization Links
• Links of Professional Associations
• Gastroenterology
• Pathology
• Allergy and Immunology
• Students with Chronic Illness
Support Groups
A number of eosinophilic and food allergy support groups are available on Yahoo!. Membership is required for most groups. APFED does not own, endorse or otherwise support any particular group. We recommend caution when obtaining medical advice from non-medical professionals. As always, all health care decisions should be discussed with your physician. Yahoo! Groups Search for ‘eosinophilic’
Find a local APFED Support Group in your area or learn more about starting a group
Support Groups
Connect with other APFED families online through our message board.
Travel Assistance for Medical Care and Flight Sources
National Patient Air Transport HELPLINE 1-800-296-1217
Angel Flights 1-800-296-1217
Angel Flight America 1-800-446-1231
Air LifeLine 1-877-AIRLIFE
Air Care Alliance 1-918-745-0384
Corporate Angel Network 1-800-328-4226
Hope Air (CANADA) 1-877-346-4673
Mercy Medical Airlift 1-800-296-1191
Miracle Flights for Kids 1-702-261-0494
1-281-261-6626 (Bob Jack)
Delta SkyWish 1-877-327-8211
1-817-963-8118
(Civic and Charitable Contributions Dept)
1-214-792-4103
Air Travel
Permitted and Prohibited Items
Car Rental
Enterprise Rent-A-Car 5% discount for APFED members use ID#: 17C6848 PIN: PCV
www.enterprise.com
Accommodations/Lodging
Ronald McDonald Houses provide temporary housing for families traveling with children for pediatric medical care. RMH are near many major medical centers. For more information, or to find a RMH, visit the Ronald McDonald House Charity website
Office: 828-253-1188 Toll-Free: 1-800-542-9730
This is a corporate housing company- All of the accommodations are fully furnished 1, 2
or 3 bedroom apartments and are not necessarily near a hospital. However, if ground transportation is available, for the long-term stay, they are excellent. Bridgestreet has some contracts with various hospitals around the country for discounts to traveling families. Please inquire as to whether they have availability at your required destination.
Phone: 1-800-278-7338
Formula Coverage Assistance
http://www.ross.com/reimbursement/default.asp
http://www.ross.com/reimbursement/statedetail.asp?StateID=1
http://www.needymeds.com/papforms/rosmed0407.pdf
http://www.rxhope.com/papinfo/company/pdf/RossMetabolic.pdf
http://www.neocate.com/aaa_neocate/0,534,112,97,236,0,0-179-77.ashx
http://www.shsna.com/pages/neocate_junior_ins_letter.htm
Medication Assistance
HelpingPatients.org - Patient Assistance
Mepolizumab Patient Assistance no. to Glaxco: 1-888-825-5249
Grants for Medical Services
The United Healthcare Children's Foundation is offering support to meet the
needs of children nationwide with assistance grants for medical services
not fully covered by health insurance.
Parents and caretakers across the country will be eligible to apply for
grants of up to $5,000.00 for health-care services that will help improve
their children's health and quality of life.
For more information visit: http://www.uhccf.org
Related Organization Links
All organizations listed are Section 501c3 nonprofit organizations.
AFA- Allergy and Asthma Foundation of America
AANMA- Asthma and Allergy Network, Mothers of Asthmatic
ALERT- American Latex Allergy Association
CCED Cincinnati Center for Eosinophilic Disorders
CCFA- Crohn’s and Colitis Foundation of America
CDF- Celiac Disease Foundation
Childrens Magic
CSSA- Churg Strauss Syndrome Association
CVSA- Cyclic Vomiting Syndrome Association
FAAN- Food Allergy and Anaphylaxis Network
GIRF- Gastrointestinal Research Foundation
GPDA- Gastroparesis and Dysmotility Association
HES- Hyper Eosinophilia
Syndrome
IDF- Immune-Deficiency Foundation
IFFGD- International Foundation for Functional Gastrointestinal Diseases
Kids With Food Allergies
National Eosinophilia-Myalgia Syndrome Network
NEASE- National Eczema Association for Science and Education
NORD- National Organization for Rare Diseases
Oley Foundation
PAGER- Pediatric/Adolescent Gastroesophageal Reflux Association
PAK - Protect Allergic Kids
Food Allergy Initiative
Links of Professional Associations
Professional Eosinophilic Research
International Eosinophil Society (IES)
Gastroenterology
American Gastroenterology Association (AGA)
North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN)
American Society for Gastrointestinal Endoscopy (ASGE)
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Allergy and Immunology
American Academy of Allergy, Asthma and Immunology (AAAAI)
American College of Allergy
Asthma and Immunology (ACAAI)
National Institute of Allergy and Infectious Diseases (NIAID)
Pathology
Society for Pediatric Pathology (SPP)
American Society for Clinical Pathology (ASCP)
US Canadian Academy of Pathology
Students with Chronic Illness
Guide for Families, Schools and Students (PDF)
|
